Yesterday Speech Therapy's assessment confirmed ENT 's diagnosis of complete upper airway obstruction. That means Jakobe is completely unable to breathe through his mouth or nose; leaving him with only 1 avenue for air. Not 2 like most. The only source for air is through his stoma site. He is 100% trach dependent.
Also yesterday, accompanied by the ENT surgeon, an ENT doctor and an ENT resident, a respiratory therapist and two nurses, Heidi and I removed Jakobe's trach to test Jakobe's ability to withstand "decanulation" (trach out). Good news--Jakobe was able to breathe on his own for 5 minutes before becoming uncomfortable!
Jakobe continued to have excessive secretions throughout the day and required suction 10-15x/hour to keep his only airway clear. Increased secretions is common post-op and thus we were still discharged and sent home. However, throughout the evening Jakobe needed constant suctioning and began to worsen. Heidi and I called 911.
Jakobe [and I](mom drove the van) rode the ambulance back down to Children's Hospital last night. Jakobe is in the PICU again. Possibly with a viral infection.