Yesterday morning Jakobe woke up with low oxygen levels and appeared very uncomfortable; next step is respiratory distress. With quick action of an aggressive neb treatment and a significant amount of suctioning, his oxygen level and heart rate returned to base line(normal).
However, as the morning progressed and after more neb treatments, Jakobe was still unable to recover his breathing to normal. Heidi Johnson's mother's intuition along with Nurse Dawn Ogilvie's afternoon assessment on her day off, the decision was made to go to the Children's Hospital ER.
Jakobe was admitted to the hospital for observation and culture results. Thus far he is negative for RSV and influenza. The doctors are pleased with Jakobe's progress but not comfortable with the level or speed in which he is progressing. Therefore we are staying for at least one more overnight.
Spending the first seven months of his life here, all current doctor visits and services received here, and his previous surgery and PICU stay in November, Jakobe continues to capture the hearts of his Children's Hospital care givers and hospital support team. Now he is able to show his love and "almost 2yr. old" personality with all his sign language.
When learning of his cares and future endeavors before we brought him home at 7 months old, we learned numerous hospital stays were going to be part of the journey; and a journey it has become. A journey of tenacity, education, risk and reward, accomplishments, fear, faith, hope, love, and relationship.
Heidi, Jakobe, and I are greatly influenced by the unique relationship we share with each of you. Please know we walk this journey together connected in, by, and through prayer and deep faith in our shared God with each of you. You and the gifts you share in all the forms they come are received in love and are wholly cherished.
This hour we rest in restless peace, cradled in your prayers, and wrapped in love from above that is ever present in our relationships with you and in our quarantined hospital room.
Jesus loves you.