I’m really excited to let you all know that we moved to Luther Seminary in St. Paul, MN. My mom and dad say it was the easiest hard decision to make. They said because I am only 2 years old and already doing 3yr old things, I need to be closer to Children’s Hospital for more specialized things like speech therapy that includes learning how to eat solid foods with my mouth and stuff. I guess it is kinda weird that I am completely deaf without my hearing aids, hear perfectly with them, but still can only talk by using sign language because no air goes up past my voice box.
A couple weeks ago I was really happy to be only 15 minutes away from Children’s Hospital. In the middle of the night I was having a hard time breathing, needed suctioning and when they suctioned me, out came blood. It scared all of us and so we went to the ER in the middle of the night. I didn’t have to ride in the ambulance and I was able to go home in the morning because I lived so close. Although this summer has been pretty hard for me with my lungs and my trach, I am still growing and developing a lot. The doctor specialists and therapy specialists keep telling me and mom and dad how smart I am. I’m glad learning and growing isn’t a challenge I have.
Also, I want everyone to know that my Nurse Dawn Ogilvie loves me so much that she and her family are moving closer so she can still be my nurse. I love her too! She takes real good care of me and my mom says all the time that besides me, Nurse Dawn is the greatest thing she got since she said yes to me.
My dad is still going to be the pastor for Chicken Coop Church so I will still get to see some of you on Sunday nights. I like living on Luther Seminary campus because I get to play at the park close by. Please remember that I love all of you very much!