Jakobe is out of surgery and recovering in PICU. The stoma site was sucessfully revised. However, after a more thorough scope of Jakobe's cranio-facial anatomy by his surgical team, the severe level of Treacher-Collins syndrome leaves his surgical team, extended care team (speech and OT), and us still unsure about Jakobe's ability to use a speaking valve on his trach. Speech therapy will begin a new round of assessments in a couple days and before discharge.
With deep sincerity, Heidi Johnson and I thank you for your prayers and support. We feel your presence on this journey and value it greatly.